Don't let cystic fibrosis rule your life. You have the power to feel better. Here are some ways - and apps - to help you achieve that.
Things have changed. A mere 60 years ago, the life expectancy for children born with cystic fibrosis was six months. Today, adults can live happy and fulfilled lives. Science has made it all possible. Still, it is by no means an easy genetic disorder to deal with. The lungs, pancreas, liver, and kidneys can all be affected. Careful management is essential. Difficulties breathing and joint pain are some of the more common symptoms. Tracking them is very important. An app such as PainScale is a great tool that can serve this purpose quite well.
In addition to keeping an eye on your condition, you will also need to take the right drugs regularly. Your doctor will likely prescribe mucus thinners as well as antibiotics. CFTR modulator therapy also a common form of treatment. Whichever path you need to take - it is important to stick to it. Set up a reminder and take your medication on time. The more committed you are, the more likely you are to see results. It's quite simple - it will help you live a lot longer.
Anyone living with cystic fibrosis will be familiar with more than a couple of doctors. A pediatrician at first, then a pulmonologist and an internist. They are important for keeping you healthy. Still, hospital visits can be a tedious experience, and getting an appointment is not always easy. Not to mention the costs in countries like the US. If you feel like your condition has turned for the worse, or you need to ask some questions, consulting a specialist online is a good alternative. Contacting a doctor through a telemed app is surprisingly affordable and stress-free.
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